From the 22-25 September, HAEJ President, Beverley Yamamoto, attended the 5th China Rare Disease Summit in Hangzhou, China. This was organized by CORD (the China Organization on Rare Disorders). She spoke about the power of patient advocacy organizations to improve the treatment environment and to engage as equal partners with other key stakeholders who are furthering out knowledge about HAE. Next year in September, the ICORD (International Conference on Rare Diseases) will be held in Beijing and it will be co-hosted with CORD (Chinese Organization on Rare Disease Disorders